UCSF Partners in Care supports special programs that offer compassionate assistance to patients and their families when they need it most. In an effort to help recognize a few of the outstanding grants supported by donations made to UCSF Partners in Care, we will be spotlighting a new grant each month .

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Isolation Materials for Bone Marrow Transplant Unit

The Bone Marrow Transplant Isolation Materials program supports pediatric bone marrow transplants with their coping and developmental needs. Whether an infant or young teen, bone marrow transplants are needed for children who have cancer, such as lymphomas and leukemia, bone marrow disorders and metabolic diseases. The intent of the transplant is to replace unhealthy or destroyed bone marrow stem cells with normal bone marrow stem cells.While in isolation, during this trying time, the children are often unable to play or have contact with any of the other kids.  This is necessary in order to control the risk of infection and germs.
Because of this, UCSF Partners in Care felt strongly when awarding this program $1,000 for provisions of play and art materials. Common play and recreational activities include listening to music, playing board games, reading, putting puzzles together, arts and crafts, and keeping journals and scrapbooks. 

 

Congratulations to our Ron Rankin Booster Grant Recipients

Our first recipient, Technology and Nutrition in Waiting Area – Women’s HIV Clinic will receive a $20,000 grant to employ technology tools for improving the often chaotic and overwhelming clinic waiting experience.

Most of the individuals visiting the clinic have high-needs, complex medical and psychosocial challenges, are disabled and live in poverty. The UCSF Women’s HIV Program was the first in the country specifically designed to care for women with HIV.

Since the waiting room can be a source of additional trauma for patients as well as staff, the grant will offer patients with a calming, interactive educational experience by funding smart boards, ipads and headphones for use in the clinic waiting area before and after medical appointments. Patients will have the opportunity to learn about relevant medical topics, nutrition, and self-care strategies such as chair yoga, meditation, relaxation, and visualization or interact with their family members and community. Since malnutrition is common among this patient population, healthy food options during wait times will help support and reinforce treatment.

UCSF Partners in Care is pleased to award this grant so that patients and families attending this clinic can feel more supported, safe, knowledgeable and engaged in their own health care.

 

Our second recipient, Virtual Reality (VR) Guided Meditation – Radiation Oncology Department will utilize virtual reality technology to enable patients with high emotional distress scores to take a natural environment guided meditation. Cancer patients can escape to continents they have never been to before or return to a familiar place of their childhood. More importantly, this meditation can be used to reduce stress, ease anxiety, diminish depression and improve patients’ ability to cope. Improved coping can lead to an improved quality of life. Additionally, meditation teaches the regulation of the breath, which ultimately allows for the physical state of well-being, comfort and rest regardless of religion, cultural background or prior meditation experience.

Currently, there are no systems in place for real time interventions, spiritual care services are not available to outpatients, medications often have side effects and may take weeks to relieve symptoms, psychosocial referrals may take days to weeks to accomplish, and many patients do not have the coverage for this care.

With this grant the Department will be able to pioneer a process of care that is a reflection of not only our incredible technology, but also of our understanding of human needs.

 

A special thanks to Ron Rankin for his compassion and generosity in partnering with UCSF Partners In Care. His support year after year allow us to implement these wonderful programs and help promote awareness about health and self-discovery, giving hope to the community.

 

As always, your support in any form is welcomed, and simply becoming a member of UCSF Partners In Care is also a great initial step.

 


Some of our other recent grant recipients include:

Safety, Self-Efficacy & Wellness : We had the pleasure of speaking to Carla Graff, director at the Medical Center at UCSF. The Safety, Self-Efficacy and Wellness Program provides valuable tools and materials essential to maintaining effective medical treatment programs for many low-income and homeless persons.

As healthcare navigators, teams of healthcare professionals—including psychiatric nurse practitioners who deal with mental disorders such as depression and bi-polarism— help patients continue and follow-through with their treatment/programs. Social workers assess patient progress to make sure each step of their treatment is completed and goals are met. They also coordinate with primary care physicians to ensure the patient is on the right track to lose weight for surgery or healthy enough to make it to their daughter’s wedding. These are just some examples of the effort put in to making this unique program a success.

No One Dies Alone : Based on a model that originated at Sacred Heart Medical Center in Eugene, OR, in 2001, and is being used at numerous hospitals in the U.S.  The primary aim for our program is to support patients who are imminently dying but do not have family members, spouses/partners, friends, or other loved ones nearby.

These patients are offered the opportunity for a volunteer companion to talk with, sit silently and keep watch, or hold their hands within the days and hours before their deaths.  A secondary aim is to provide some respite care for families and loved ones who are holding vigil with a dying adult patient-giving the gift of a few hours where they could leave the hospital for some fresh air or a meal, with the knowledge that someone is sitting with their loved one while they are away.

Thanks to the generosity of the UCSF Partners in Care grant, the Department of Spiritual Care Services is currently recruiting and on-boarding volunteers (both UCSF staff and members of the local community), developing training materials and orientation sessions, and purchasing supplies to create resource bags that will be used by our volunteer companions when making a NODA visit.  Your generous donation will allow the Medical Center – in keeping with its mission of “caring, healing, teaching, and discovering” – to extend our care to people who otherwise might face the end of their lives without someone nearby to offer comfort.

There are several ways to help support this grant specifically: If you are interested in participating as a volunteer, please contact Spiritual Care Services at 415-353-1941 or 415-514-4200 or e-mail us at spiritualcareservices@ucsf.edu or peter.clark@ucsf.edu.

Adult Amenities Cart : Adult Life Services is in its pilot phase, and hopes to mirror the structure and purpose of Child Life Services.  Through the provision of specially trained volunteers, a variety of amenity supplies, patient diversional activities, and centralized resources, it is our goal to alleviate anxiety, boredom, isolation, and stress for our adult patients.  In turn, families and friends will know their loved ones are receiving individualized attention directed to their specific interests and needs.

The Foreign Language Newspapers and Movies Grant : Adult Life Services is in its pilot phase, and hopes to mirror the structure and purpose of Child Life Services.  Through the provision of specially trained volunteers, a variety of amenity supplies, patient diversional activities, and centralized resources, it is our goal to alleviate anxiety, boredom, isolation, and stress for our adult patients.  In turn, families and friends will know their loved ones are receiving individualized attention directed to their specific interests and needs.

The Learn About Me boards : Adult Life Services is in its pilot phase, and hopes to mirror the structure and purpose of Child Life Services.  Through the provision of specially trained volunteers, a variety of amenity supplies, patient diversional activities, and centralized resources it is our goal to alleviate anxiety, boredom, isolation, and stress for our adult patients. In turn, families and friends will know their loved ones are receiving individualized attention directed to their specific interests and needs.


Grant Programs supported in FY 2014-15