UCSF Partners in Care supports special programs that offer compassionate assistance to patients and their families when they need it most. As always, your support in any form is welcomed, and simply becoming a member of UCSF Partners In Care is also a great initial step.
The following summarizes a sampling of the patient and family program grants we funded through July 2017.
Infant Support and Stimulation
Child Life Services, UCSF Benioff Children’s Hospital – This grant provides developmentally appropriate auditory, visual, tactile, and kinesthetic stimulation to hospitalized infants and toddlers to best support theirgrowth, healing and development.
Reflexology During Chemotherapy
Osher Center– This innovative program was launched with UCSF Partners in Care seed funding in 2013. Chemotherapy patients reported significant reductions in nausea, cramping, fatigue and headaches. We renewed the grant for 2014-15.
Mt Zion Pediatrics Patient Support
Distraction tools (pinwheels, bubbles, etc.) for the exam and waiting rooms help reduce children's anxiety while awaiting medical exams or painful procedures like immunizations and blood tests. Pinwheels and bubbles reinforce deep breathing which helps relax. UCSF Primary Pediatrics at Mt Zion is the main pediatric primary care clinic serving the UCSF Benioff Children’s Hospital. They see an average of 150 patients/day, or between 31,200 – 54,750 patients/year.
Volunteer Services – This grant continues support for Holiday Hugs,Hug-Me- Heart Pillows, Holiday Bingo and provides funding to expand these programs at the new Mission Bay Hospital.
Pediatric Cardiac ICU
Provides special snuggler, Velcro wrap blankets to give babies the comforting sense of containment while allowing practitioners access to IV’s, tubes, drains, etc., and reducing the risk of overheating.
Mission Bay Religious/Spiritual Resources
To help patients who have experienced the loss of a pregnancy or an infant, a small ceramic heart-within- a- heart was created as a remembrance. The outer portion of the heart remains with the mother, and the inner portion of the heart may be placed with the infant or fetal remains as a way of honoring that infant’s life.
Hematology/Oncology – This program teaches patients undergoing chemo-therapy to apply make-up and care for their skin during their course of treatment. It helps patients to see themselves as beautiful even without hair and with whatever chemo-induced facial imperfections they may develop. The focus is on building a positive, lasting impact on their psyche.
Safety, Self-Efficacy & Wellness
UCSF Care Support Program – This grant provides low cost items that support comfort, safety and improved quality of life for our most vulnerable patients, who would otherwise be unable to afford them. For example, low cost glasses help patients to read for pleasure as well as read instructions on their medication bottles; walkers with a seat promote exercise and independence; medical alert bracelets ensure safe care in the community.
Moving through Cancer: An Exercise Manual for Patients with Cancer
With funding from UCSF Partners in care, the UCSF Department of Physical Therapy and Rehabilitation Science will collaborate with Sunflower Wellness to create and distribute a free exercise booklet with guidelines and detailed instructions for a safe return to exercise activity. Print and electronic versions will available to all adult cancer patients at UCSF, including the Helen Diller Family Comprehensive Cancer Center, Exercise Counseling Programs offered at UCSF by the Sunflower Wellness Cancer Exercise Specialists, and through the
UCSF Physical Therapy Department.
Sweat Suits & Shoes
Social Work – Grant funds clean clothing and shoes for variety of patients including those whose clothes were destroyed; homeless patients; and low-income patients who do not have adequate clothing for discharge.
A mobile software application for patients and family members to easily find info relevant to their hospital stay. HOSPLIFE provides valuable info at each stage of a hospital stay: Admission, Hospitalization, Discharge, Home/nursing facility.
Books at Mt. Zion
To encourage non-native English speaking parents to read to their children—both patients and siblings, the Primary Pediatric Clinic at UCSF Mt. Zion requested funds for clean, new children’s books in languages other than English.
Pediatric Multiple Sclerosis
UCSF has one of the few Pediatric MS centers on the West Coast. Books and small toys distract and alleviate children’s anxiety during long exams, and entertain young siblings during lengthy travel & wait times.
“Make Some Memories” Scrapbooking
This program offers parents and hospitalized children the opportunity to document their personal journey through treatment and healing. Not all children will have happy and successful outcomes, so the scrapbooks provide a tangible means for creating, sharing and preserving positive memories for families and siblings.
Supporting Appointment Compliance for High Risk Patients
The Positive Care Center at UCSF – This project reduces incidence of missed appointments and decreases health disparities for low-income individuals living with HIV/AIDS by providing assistance for those who lack the means necessary to reach our clinic, a significant barrier to accessing consistent care.
Warm Hearts 2U
Because ICU patients are often admitted as emergencies, their families are unprepared for an overnight stay in the waiting room. This grant funds comforting blankets for family members as they sometimes camp out overnight awaiting outcomes in a highly technical and medically intense environment such as 10th floor Intensive Cardiac Care Unit.
Bone Marrow Transplant Isolation Materials
This project supports pediatric bone marrow transplant patients with their coping and developmental needs
during their lengthy isolation by providing clean and infection free play and art materials.
Child Life Services, UCSF Benioff Children’s Hospital – Coping Kits consist of a careful selection of distraction and relaxation items that are used to help pediatric patients cope during painful procedures. Coping Kit items may include stress balls, bubbles, light spinners, pinwheels, “Eye Spy” books, etc. Coping Kits are located on pediatric units throughout Benioff Children’s Hospital and pediatric outpatient clinics.
Breast Cancer Related Lymphedema Self Care Videos
The Department of Physical Therapy and Rehabilitation Science from UCSF School of Medicine will create two videos for UCSF breast cancer patients and survivors. The first video will demonstrate self-care and upper extremity self-massage techniques to assist patients in preventing or managing arm lymphedema after breast cancer treatment. The second video will give home exercise instruction specifically designed for breast cancer patients with or at risk for developing breast cancer related lymphedema.
UCSF Medical Center Heart Failure Program – Elderly, low income heart failure patients are often challenged to purchase even the most needed medications and scales for weight monitoring. Scales provided by UCSF Partners in Care improve outcomes by promoting self-management skills for heart failure patients and Families.
Day of Remembering
UCSF Care at Home provides primary and palliative medical care to frail home-limited patients in San Francisco. These patients have complex chronic illnesses, and about a third of our patients die each year. UCSF Partners in Care underwrites a Day of Remembering ceremony for the staff, family, and friends to memorialize and celebrate the lives of patients. It is an important way to support both the staff and family.
Recliners for Respite
UCSF Partners in Care will fund several special Recliner chairs that will provide a place to rest for family members of critically ill patients. Currently, family members who can’t afford to pay for a hotel, or do not want to leave the hospital because their loved one is so ill, end up sleeping on the waiting room floor or pulling together chairs and side tables to try to lie down for rest or relief.
Healing Touch – Complimentary Therapy for Patients and Families
Anne Jensen, a Registered Nurse and Level 2 Healing Touch (HT) trained provider, has been giving HT treatments to patients on 14 Moffitt for the past 6 months through the Department of Nursing Evidence Based Practice Fellowship (EBP). The UCSF Partners in Care Support Grant would allow for this complimentary and highly effective therapy to continue and expand at UCSF.
Child and Adolescent Gender Center Clinic
This grant will fund production of an informational packet for families that will help during their initial visit to the UCSF Child and Adolescent Gender Center (CAGC) Clinic. The program will also pilot providing transgender resource books for low-income parents and transgender adolescents and young adults, as well as picture books for gender expansive children. To see oneself and one’s family reflected on the printed page and in the world is a powerful and validating experience that can make a huge difference to the life of a child, a teen, a family.
Congratulations to our Ron Rankin Booster Grant Recipients
Our first recipient, Technology and Nutrition in Waiting Area – Women’s HIV Clinic will receive a $20,000 grant to employ technology tools for improving the often chaotic and overwhelming clinic waiting experience.
Most of the individuals visiting the clinic have high-needs, complex medical and psychosocial challenges, are disabled and live in poverty. The UCSF Women’s HIV Program was the first in the country specifically designed to care for women with HIV.
Since the waiting room can be a source of additional trauma for patients as well as staff, the grant will offer patients with a calming, interactive educational experience by funding smart boards, ipads and headphones for use in the clinic waiting area before and after medical appointments. Patients will have the opportunity to learn about relevant medical topics, nutrition, and self-care strategies such as chair yoga, meditation, relaxation, and visualization or interact with their family members and community. Since malnutrition is common among this patient population, healthy food options during wait times will help support and reinforce treatment.
UCSF Partners in Care is pleased to award this grant so that patients and families attending this clinic can feel more supported, safe, knowledgeable and engaged in their own health care.
Our second recipient, Virtual Reality (VR) Guided Meditation – Radiation Oncology Department will utilize virtual reality technology to enable patients with high emotional distress scores to take a natural environment guided meditation. Cancer patients can escape to continents they have never been to before or return to a familiar place of their childhood. More importantly, this meditation can be used to reduce stress, ease anxiety, diminish depression and improve patients’ ability to cope. Improved coping can lead to an improved quality of life. Additionally, meditation teaches the regulation of the breath, which ultimately allows for the physical state of well-being, comfort and rest regardless of religion, cultural background or prior meditation experience.
Currently, there are no systems in place for real time interventions, spiritual care services are not available to outpatients, medications often have side effects and may take weeks to relieve symptoms, psychosocial referrals may take days to weeks to accomplish, and many patients do not have the coverage for this care.
With this grant the Department will be able to pioneer a process of care that is a reflection of not only our incredible technology, but also of our understanding of human needs.
A special thanks to Ron Rankin for his compassion and generosity in partnering with UCSF Partners In Care. His support year after year allow us to implement these wonderful programs and help promote awareness about health and self-discovery, giving hope to the community.